Advocating For Your Child
No. 74; September 2023
According to the National Health and Nutrition Examination Survey, 1 in 5 children will experience signs and symptoms of a psychiatric disorder at some point in their lives. Some nine million children have serious emotional problems at any point in time. Yet, only 1 out of every 2 children will receive appropriate treatment. When parents or teachers suspect that a child may have an emotional problem, they should seek a comprehensive evaluation by a mental health professional specifically trained to work with children and adolescents.
Signs and symptoms of childhood and adolescent emotional problems may include:
- School problems and/or drop in grades
- Frequent fighting with peers, authority figures, and/other members of their family
- Trouble sleeping
- Feeling sad
- Thoughts about suicide or running away
- Excessive weight loss or gain
- Troubling or disturbing thoughts
- Use of drugs or alcohol
- Withdraw or isolation from friends, and/or family members
- Injuring or killing animals
- Stealing or lying
- Mood swings
- Setting fires
- Obsessive thoughts or compulsive behaviors
- Dangerous or self destructive behavior
- Trouble paying attention
- Anxiety or frequent worries
Throughout the evaluation process, parents should be directly involved and ask many questions. It's important to make sure you understand the results of the evaluation, your child's diagnosis, and the full range of treatment options. If parents are not comfortable with a particular clinician, treatment option, or are confused about specific recommendations, they should consider a second opinion.
If the child and/or family is having difficulties understanding a diagnosis or treatment plan due to a language/cultural barrier, seeking a second opinion from a culturally competent and culturally sensitive clinician is recommended.
Before a child begins treatment, parents may also want to ask the following:
- What are the recommended treatment options for my child?
- How will I be involved with my child's treatment?
- How will we know if the treatment is working?
- How long should it take before I see improvement?
- Does my child need medication?
- What should I do if the problems get worse?
- What are the arrangements if I need to reach you after-hours or in an emergency?
You may also need to advocate for your child to be seen in a timely way and by the most appropriate clinician. Most insurance plans now include some form of managed care, which may utilize provider panels with few mental health professionals. However, many states now have laws concerning reasonable access to specialists. If you have problems or questions, try calling the Department of Insurance, the Patient Ombudsman/Advocate, or the Department of Consumer Affairs at your insurance company.
Ongoing parental involvement and support are essential to the overall success of treatment. Depending on the nature of your child's problems, it may also be important to involve the school, community agencies, and/or juvenile justice system. In addition, it may be helpful to learn how to access other support services such as respite, parent skill building, or home-based programs. Local advocacy groups can also provide valuable information, experience and support for parents.
Although serious emotional problems are common in childhood and adolescence, they are also highly treatable. By advocating for early identification, comprehensive evaluation, and appropriate intervention, you can make sure your children get the help they need and reduce the risk of long-term emotional difficulties.
For more information about parent advocacy, contact:
National Federation of Families
(240) 403-1901
15800 Crabbs Branch Way, Suite 300
Rockville, MD 20855
ffcmh.org
National Alliance of the Mentally Ill (NAMI)
(703) 524-7600
4301 Wilson Blvd., Suite 300
Arlington, VA 22203
nami.org
Mental Health America
(703) 684-7722
500 Montgomery Street, Suite 820
Alexandria, VA 22314
nmha.org
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